LGMD SCIENTIFIC WORKSHOP

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On February 8, 2024, The Speak Foundation convened a multi-stakeholder LGMD Scientific Drug Development Workshop in Rockville, Maryland. This event was held in person and virtually, by invitation. The workshop was held to drive the momentum for the sense of urgency needed by the patient community to accelerate LGMD drug development. 

The LGMD Scientific Workshop included discussion with clinicians, scientific researchers, drug developers, regulators, patients and patient advocates on the characteristics of LGMD that drive drug development programs. "We are thrilled that the workshop advanced a collaborative dialogue and brought people together from every facet of the drug development process to drive progress for patients. This was truly a monumental event for the LGMD community and a model for others to follow in the future,” said Kathryn Bryant Knudson, founder of The Speak Foundation. 

For more information, you can read the press release here. You can also download our workshop summary or program and watch the full recording of the workshop below. For inquiries, please contact kathryn@thespeakfoundation.com.