THE SPEAK FOUNDATION IS AN INTERNATIONAL ORGANIZATION FOR LGMD
Please note that this initial endeavor represents Phase 1 and will include six LGMD subtypes. We anticipate additional LGMD subtypes will present to the FDA at future PFDD/EL-PFDD meetings.
WE NEED YOU!
Do you want to help us make historical changes for the limb-girdle community?
If so, we need your voice! Simply click on the button below to help. The subtypes of 2A, 2C, 2D, 2E, 2F, and 2I will be highlighted in this first phase of the EL-PFDD meeting.
Other forms of LGMD anticipate future meetings with the FDA.
Sign up to be included in the Limb Girdle Muscular Dystrophy Patient Network where you will receive cutting edge research updates from the leading experts in the world such as the GRASP LGMD consortium and also be invited to hear about new clinical trials. When you sign up here, you will also receive the free LGMD News Magazine if you live in the USA. Anyone can join the LGMD Patient Network.