THE SPEAK FOUNDATION IS AN INTERNATIONAL ORGANIZATION FOR LGMD
The entire patient community is invited to attend! Additionally, anyone with a pattern of weakness resembling LGMD is also invited to attend this important patient advocacy event, as The Speak Foundation is an organization representing ALL forms of LGMD and even ones that have not yet been discovered. Invited pharmaceutical companies will be in attendance to hear from you and also to share with the community, so you won't want to miss it!
The Speak Foundation will also have a special event during the summit - a unique roundtable discussion featuring 8 individuals living with LGMD from around the globe. During this discussion, these selected delegates will share what matters most to them in drug development. Would you like to apply to be one of those chosen delegates? You can apply when you sign up to join this groundbreaking event!
After signing up for this important event, approximately one month before the programming begins, we will email you a unique link to join virtually.
Sign up to participate by clicking the button below!
Sign up to be included in the Limb Girdle Muscular Dystrophy Patient Network where you will receive cutting edge research updates from the leading experts in the world such as the GRASP LGMD consortium and also be invited to hear about new clinical trials. When you sign up here, you will also receive the free LGMD News Magazine if you live in the USA. Anyone can join the LGMD Patient Network.