Welcome to The Speak Foundation (TSF). Founded in 2008, we are the first patient-led organization for muscular dystrophy. You can also watch the video to the right of the Founder, Kathryn Bryant Knudson, as she shares about the original vision for TSF. This foundation began as a wish when Pantene sponsored the “Beautiful Wishes” campaign. Kathryn’s wish became reality to help children, teens, and adults with limb girdle muscular dystrophy and other rare forms of NMD.
Kat Bryant Knudson (pictured left) graduated with distinction from the University of Virginia with a B.A. degree in Psychology. She then went on to achieve a dual Master's degree in Marriage and Family Therapy and in Christian Education at SWBTS. In 2008, Kat was awarded the national winner of Pantene's competition and The Speak Foundation was founded.
Jessica Evans (pictured right) graduated from Villanova University with a B.A. in Psychology in 2005. She then went on to receive her Doctorate in Clinical Psychology from Immaculata University in 2012. Jessica has always been interested in disability and positive coping. In 2008, Jessica joined Kat Bryant to volunteer with the Speak Foundation to help others find their purpose and discover hope in spite of a diagnosis of limb-girdle muscular dystrophy. Jessica lives with LGMD2A/R1.
Sign up to be included in the Limb Girdle Muscular Dystrophy Patient Network where you will receive cutting edge research updates from the leading experts in the world such as the GRASP LGMD consortium and also be invited to hear about new clinical trials. When you sign up here, you will also receive the free LGMD News Magazine if you live in the USA. Anyone can join the LGMD Patient Network.