IMPORTANT NEW HELP FOR LGMD FAMILIES AFFECTED BY COVID-19

HOW WE BEGAN AS A PATIENT LED ORGANIZATION

Welcome to The Speak Foundation (TSF). We are the first patient led organization for muscular dystrophy.  You can also watch the video below of the Founder, Kathryn Bryant, sharing about the original vision for TSF. This foundation began as a wish when Pantene sponsored the “Beautiful Wishes” campaign. Kathryn’s wish became reality to help children, teens, and adults with disabilities! TSF is now dedicated to helping people of all ages cope with and overcome the challenges of living with a neuro

Our Programs

National LGMD Conference

Uniting the entire LGMD community so that we make a difference together in future treatments for this rare disease.