Be a Voice for Limb Girdle Muscular Dystrophy

Welcome to The Speak Foundation. Founded in 2008, we are the first patient-led organization for muscular dystrophy. You can also watch this video from the very start where Founder, Kathryn Bryant Knudson, shares about the original vision for TSF. This foundation began as a wish when Pantene sponsored the “Beautiful Wishes” campaign. Kathryn’s wish became reality to help children, teens, and adults with limb-girdle muscular dystrophy and other rare forms of neuromuscular disorders.

The Speak Foundation's Leadership

Jessica Evans, PsyD, Assistant Director

Jessica Evans (pictured left) graduated from Villanova University with a Bachelor of Arts in Psychology in 2005. She went on to earn her Doctorate in Clinical Psychology from Immaculata University in 2012. Jessica has long been passionate about disability advocacy, positive coping and adjustment, and supporting individuals living with disabilities. She lives with LGMD R1/2A and joined Kat Bryant Knudson as part of the Speak Foundation in 2008.

Kathryn Bryant Knudson, Founder and President

Kat Bryant Knudson (pictured right) graduated with distinction from the University of Virginia with a B.A. degree in Psychology. She then went on to achieve a dual Master's degree in Marriage and Family Therapy and in Christian Education at SWBTS. In 2008, Kat was awarded the national winner of Pantene's competition and The Speak Foundation was founded. Kat lives with LGMD R9/2I.