The Speak Foundation

The Speak Foundation
The Speak Foundation
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    • GLOBAL ADVOCACY SUMMIT
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The International LGMD Conference is back in person for 2023!

The International LGMD Conference is back in person for 2023!

The International LGMD Conference is back in person for 2023!

The International LGMD Conference is back in person for 2023!

The International LGMD Conference is back in person for 2023!

The International LGMD Conference is back in person for 2023!

Conference Dates October 27-29th, 2023

Registration begins April 5th

Find out more

Are you looking for information about our magazine?

Learn more about our magazine, LGMD News, the world's first magazine for limb-girdle muscular dystrophy, by clicking the button below.

Find out More

2022 LGMD Global Advocacy Summit Video

For a copy of the Summit program, please visit this link.

2021 International LGMD Conference Videos

DAY 1 (from 9/17/2021)

DAY 2 (from 9/18/2021)

DAY 3 (from 9/19/2021)

DAY 4 (from 9/20/2021)

For a copy of the 2021 conference program, please click this link.

Our Team

Our History

Our History

Our amazing team of volunteers are committed to  helping others. Think  you would be a good fit? Contact us!

Our History

Our History

Our History

Since 2008, TSF is the first patient run organization for muscular dystrophy.  Thanks to the helping hands of this amazing community!

Our Goals

Our History

Our Goals

To speak up for those without a voice and to provide hope to those living with muscular dystrophy

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Copyright © 2008 The Speak Foundation

The Limb Girdle Muscular Dystrophy Foundation

All Rights Reserved.

The Speak Foundation is a 501(c)(3), Est. 2008.

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Sign up to be included in the Limb Girdle Muscular Dystrophy Patient Network where you will receive cutting edge research updates from the leading experts in the world such as the GRASP LGMD consortium and also be invited to hear about new clinical trials.  When you sign up here, you will also receive the free LGMD News Magazine if you live in the USA.  Anyone can join the LGMD Patient Network.