The Speak Foundation
The Speak Foundation
Every person deserves excellent healthcare. This is why The Speak Foundation will be starting a Health Equity Grant program late Spring 2024.
Many individuals with physical health conditions struggle with healthcare insecurity, marked by lack of access to quality care and the financial inability to travel. At the Speak Foundation, we believe that that financial struggles should not prevent anyone from world-class care. The Health Equity Grant program will provide the means for approved LGMD patients in the United States to visit leading centers of LGMD excellence. Although this program currently only provides grants to those living in the United States, we are hopeful that international organizations will help to provide this type of assistance for individuals living all over the world. This program opens July 1, 2024. To find out if you are eligible for a travel grant, please contact jessica@thespeakfoundation.com after this date. The program will involve reimbursement of travel expenses and recipients must cash the check within 90 days of receipt.
Thank you to Sarepta Therapeutics for providing this grant to the Speak Foundation.
The HOPE Project awards a one-time stipend of up to $250 to qualified applicants living in the United States who have a diagnosis of limb-girdle muscular dystrophy and need financial assistance for durable medical equipment (DME) expenses for mobility (including mobility scooters, bedside commodes, and shower chairs, for example). The Speak Foundation will accept applications for the next cycle from July 1, 2024, through July 31, 2024.
Return here July 1 for the HOPE Grant application.
The C.A.R.E. Program was created to provide newly diagnosed patients with limb-girdle muscular dystrophy with a giftbox full of helpful tools which includes smart technology and other supportive items donated by the International Consortium of LGMD Organizations. This program is specifically endowed for residents of the United States who were diagnosed with LGMD on or after May 1, 2021.
Applications for a C.A.R.E. box will be accepted again soon. Please check back.
Copyright © 2008 The Speak Foundation
The Limb Girdle Muscular Dystrophy Foundation
All Rights Reserved.
The Speak Foundation is a 501(c)(3), Est. 2008.
Sign up to be included in the Limb Girdle Muscular Dystrophy Patient Network where you will receive cutting edge research updates from the leading experts in the world such as the GRASP LGMD consortium and also be invited to hear about new clinical trials. When you sign up here, you will also receive the free LGMD News Magazine if you live in the USA. Anyone can join the LGMD Patient Network.