PCA Stipend Program
This 2025 round of our Personal Care Attendant (PCA) stipend program is closed. Stay tuned in 2026. This grant funds personal care assistance for full time workers in the US who live with a form of LGMD. The Speak Foundation is giving out 10 grants of $3000 to qualified individuals. We are so grateful to the generous grant we received from a private donor to help individuals living with LGMD.
Application available upon emailing jessica@thespeakfoundation.com
Health Equity Grant
Our Health Equity Grant program (open as of July 1, 2024) provides travel grants for qualified LGMD patients living in the United States to visit approved, leading centers of excellence for LGMD.
Approved centers include*:
- UCI Health ALS & Neuromuscular Center- Orange, CA https://www.ucihealth.org
- University of Florida Health Center for Pediatric Neuromuscular and Rare Diseases- Gainesville, FL https://ufhealth.org/locations/uf-health-center-for-pediatric-neuromuscular-and-rare-diseases
- University of Iowa Health Care and Carver College of Medicine- Iowa City, IA https://uihealthcare.org
- University of Minnesota Medical School- Minneapolis, MN https://med.umn.edu
- University of Texas San Antonio- San Antonio, TX https://uthscsa.edu
- Virginia Commonwealth University- Richmond, VA https://www.vcuhealth.org
- Washington University School of Medicine in St. Louis- St. Louis, MO https://medicine.wustl.edu
* If you have another center in the USA that you would like to be seen at for LGMD, please connect with us.
Eligibility criteria:
- US residency
- Suspected or confirmed diagnosis of LGMD
- Lacking access to an excellent facility for medical care/in need of multidisciplinary care In need of financial assistance
- Must be able to travel
To find out if you are eligible for a travel grant, please contact jessica@thespeakfoundation.com . The program involves reimbursement of travel expenses, and recipients must cash the check within 90 days of receipt.
Thank you to Sarepta Therapeutics for providing this grant to the Speak Foundation.
The HOPE Project
The HOPE Project awards a one-time stipend of up to $300 to qualified applicants living in the United States who have a diagnosis of limb-girdle muscular dystrophy and need financial assistance for durable medical equipment (DME) expenses for mobility (including mobility scooters, bedside commodes, and shower chairs, for example).
Applications will be open Jan 5-February 5, 2026. Check back. jessica@thespeakfoundation.com
The C.A.R.E. Program
The C.A.R.E. Program was created to provide newly diagnosed patients with limb-girdle muscular dystrophy with a giftbox full of helpful tools which includes smart technology and other supportive items donated by the International Consortium of LGMD Organizations. This program is specifically endowed for residents of the United States who were diagnosed with LGMD on or after May 1, 2021.
Applications for a C.A.R.E. box will be accepted again soon. Please check back.