REGISTRATION IS NOW OPEN! RESERVE YOUR TICKETS TODAY!

Registration Is Now Open!

Registration for the 4th International LGMD Conference is officially open! Purchase your tickets and book your rooms fast as we expect a record breaking attendance in 2025.

Join our Limb-Girdle Muscular Dystrophy Patient Network

Anyone can join our LGMD Patient Network. By joining, you will also receive a free subscription to our LGMD News magazine and stay informed on the latest research in LGMD. If you have a genetic mutation that is considered a variant of unknown significance but still experience weakness, we acknowledge and welcome you to our community as well!

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By signing up, the Speak Foundation will email you digital copies of every newly released issue of LGMD News magazine, updates on cutting edge research, clinical trial information, and other material that is important to you as an individual living with limb-girdle muscular dystrophy. Your information is always kept 100% protected and confidential and is never shared. Individuals living in the USA will receive a paper copy of the magazine to their mailing address provided above.

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Learn more about our magazine, LGMD News, the world's first magazine for limb-girdle muscular dystrophy, by clicking the button below.

Sign up for our LGMD Patient Network and receive a free copy of our magazine. Find out about potential treatments and clinical trials in each issue.

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Our Team

Our History

Our amazing team of volunteers are committed to helping others. Think you would be a good fit? Contact us!

Our History

Since 2008, TSF is the first patient run organization for muscular dystrophy. Thanks to the helping hands of this amazing community!

Our Goals

Our History

Our Goals

To speak up for those without a voice and to provide hope to those living with muscular dystrophy

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The Limb Girdle Muscular Dystrophy Foundation

The Speak Foundation is a 501(c)(3), Est. 2008.

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Sign Up Today!

Sign up to be included in the Limb Girdle Muscular Dystrophy Patient Network where you will receive cutting edge research updates from the leading experts in the world such as the GRASP LGMD consortium and also be invited to hear about new clinical trials. When you sign up here, you will also receive the free LGMD News Magazine if you live in the USA. Anyone can join the LGMD Patient Network.