Join us for our 11th Annual Conference for Individuals with Neuromuscular Diseases & their loved ones


Friday, June 28th – Sunday, June 30th, 2019

Please follow us on Facebook to receive more updates about the conference-

RSVP on our Facebook invitation

 Westin Buckhead Atlanta | 3391 Peachtree Rd NE, Atlanta, GA 30326
Phone: 404-365-0065 | Reservations: 800-253-1397

For those of you who are new to The Speak Foundation, we are a non-profit organization that seeks to connect the lives of those living with neuromuscular disorders. We have experienced first hand just how refreshing and comforting it is to feel like you are finally surrounded by others who just “get it!”

Our annual conference is open to individuals of all ages and families who are affected by a neuromuscular condition. We always welcome families, caregivers, and those who may be living with different disabilities to attend as well. Each year, we provide a context for relationship building. We work hard each year to plan a conference that strikes just the right balance of providing sessions that cover topics that matter most to the NMD community and also providing free time for attendees and their families to relax, enjoy outings, and connect with each other. We will provide updates here and on facebook about our exciting agenda in the future, so stay tuned for updates!

We are excited to be returning to the Westin hotel in Buckhead again this year- a hotel that was recently updated and is situated in the heart of the upscale Buckhead community, surrounded by the the city’s best luxury shopping, fine dining, and energetic nightlife! We love the Buckhead neighborhood! Westin is next door to the Lenox Square Mall and the Shops Around Lenox and across the street from Phipps Plaza. This is definitely one to plan a trip around and do some exploring! You can read more about our hotel at

To attend, you must:

Registration is FREE again this year! Note that registration is a commitment to attend the conference. It secures your spot and represents a $150.00 scholarship donation that has been provided for you so that you can attend without paying a fee. Please be mindful that if you cancel your registration last minute or simply do not show up after registering, you are preventing someone else who could have utilized that spot/scholarship.

  • Make hotel reservations here

This year, our rooms have been greatly discounted to $139 per night. Please note that these rooms, especially with accessibility features, book very quickly! Book ASAP to ensure you receive a room that meets your needs! The last day to book is Friday, May 31, 2019. The Westin Buckhead Atlanta can be reached via phone by calling 1-800-253-1397 if you have any issues with the reservation link, but we ask that you try using this website first in order to ensure you get your discounted rate and make selections to meet your personal needs! If you do call, be sure to include that this is for The Speak Foundation Conference June 28-30.


“I attended the Speak Foundation conference
for the first time in 2013 and have been hooked ever since!
The conference allowed me to be around others
with similar daily challenges and increased my self-esteem.
I grew more confident in myself and made contacts there
that led to my participation in a diagnostic study
that resulted in my genetic diagnosis.
The friends I have made through Speak are friends for life.
Attending this conference has been life changing!”
Andrea Klein, 42, Ms. Wheelchair TN 2017, Collagen 6 Congenital Muscular Dystrophy,
Cleveland, TN



“The Speak Conference. Amazing. I was taken in as family.
There was laughing, tears and more laughing.
I have gained a confidence I didn’t realize I lacked
or was possible in this journey, thanks to my ‘Speakies’!”
-Lenda H., Age 27, LGMD2E, Indiana



“I have been a ‘Speakie’ for 3 years now.
Before Speak, I dealt with my disability the best way I could,
knowing that life must go on, but I didn’t really have anyone to relate to.
Since Speak, I have learned, yes life goes on,
but there are people who understand and are there for you.
I don’t know what I would do without my ‘Speak family.’
Our laughs, our talks, and our fun times remind me that
your disability is only what your mind won’t allow you to do.”
-Sam B., Age 38, CMT, Georgia

We look forward to having you join us in June! Feel free to email with any questions. Check out pictures from past years of our conference below.


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