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  • Runway of Dreams Goes Back to School with Tommy Hilfiger August 17, 2016
    On Wednesday, Runway of Dreams once again announced it is collaborating with the iconic fashion brand Tommy Hilfiger to launch an adaptive version of the fall children’s clothing line.  Following the success of the Tommy Hilfiger Spring collection (which nearly sold out within the first week), the fall collection features a baseball jacket with concealed MagnaReady® magnets to maintain […]
  • MDA-Supported Study Validates Surgery as a Treatment for Myasthenia Gravis August 11, 2016
      In an MDA-supported worldwide study, researchers found that surgical removal of an organ called the thymus reduced muscle weakness and lowered the need for drugs that suppress the immune system in people with myasthenia gravis (MG). MG is an autoimmune neuromuscular disease that causes varying degrees of muscle weakness and fatigue. Initial treatment typically […]
  • FDA Will Review Deflazacort for Treatment of DMD August 10, 2016
    The U.S. Food and Drug Administration (FDA) has accepted Marathon Pharmaceuticals’ New Drug Applications for deflazacort for the treatment of Duchenne muscular dystrophy (DMD) and granted Priority Review. Deflazacort, a glucocorticoid, works as an anti-inflammatory and immunosuppressant. In the United States, the drug is considered an investigational therapy, as it has not been approved by […]
  • Ray Spooner, 1959 – 2016 August 9, 2016
    A bright light in our community has been extinguished. Ray Spooner — beloved husband, father, grandfather, son, brother, nurse midwife and cyclist — died yesterday, August 8, 2016, of ALS. Ray was diagnosed in 2014, just months after participating in the inaugural Ice Bucket Challenge, and in 2015 set off to cross an item off […]
  • DMD Natural History Study Seeks Participants August 2, 2016
    Researchers are looking for boys and men, ages 5 to 18 years, to participate in a natural history study that is designed to assess the potential of imaging techniques to monitor disease progression and serve as an outcome measure for clinical trials in Duchenne muscular dystrophy (DMD). Both healthy volunteers and individuals with DMD are […]

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