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  • Knocked Down By Disease And Depression, I Got Back Up August 10, 2018
    Originally published in the Hartford Courant on July 22, 2018. To see the original article, click here. For many years I was consumed by worry and bitterness, thinking I was the only one who was given an unfair lot in life. My body, once athletic and fit, was weakening from the uncompromising progression of an adult-onset neuromuscular disease […]
  • Recognizing 100 Years of Dedication: Thank You, IAFF August 9, 2018
    As the International Association of Fire Fighters gathers this week in Seattle for its 54th annual convention, we want to recognize and thank this wonderful group of men and women fire fighters who have dedicated countless hours and generosity to the Muscular Dystrophy Association. The IAFF kicked off its 100th anniversary earlier this year. For […]
  • Assessing MDA’s 2018 SMA Research Landscape August 6, 2018
    This is an unprecedented time for patients living with spinal muscular atrophy (SMA). It has now been almost two years since Spinraza became the first FDA-approved treatment for SMA, and in that time it’s proven to be a transformative therapy. Although there is much more work to be done, Spinraza has made a significant impact […]
  • MDA and Answer ALS Partner to Develop the Most Comprehensive ALS Dataset to Date August 6, 2018
    MDA recently announced that it has awarded a research infrastructure grant totaling $550,000 to Jeffrey Rothstein, M.D., Ph.D., Professor of Neurology and Neuroscience and Director, Robert Packard Center for Answer ALS Research, Johns Hopkins University School of Medicine. Answer ALS is a nationwide consortium assembling one of the most comprehensive clinical, genetic, molecular, and biochemical […]
  • Strength, Science, and Stories of Inspiration (SSSI) and MDA announce the second SSSI-MDA fellowship for graduate students and postdoctoral scholars August 2, 2018
    The Muscular Dystrophy Association is pleased to announce that it is once again partnering with Strength, Science, and Stories of Inspiration (SSSI) to support the second SSSI-MDA fellowship. This fellowship, aimed at graduate students and postdoctoral fellows that already have salary support in their existing labs, will provide additional research funding to allow those individuals to […]

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