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  • “The Most Inspiring Thing I’ve Ever Been a Part Of”: Top Fundraiser and Father of Son with Nemaline Myopathy on His Journey with Team Momentum July 21, 2017
    Pat Sawhill rattles off the marathons that he has completed for Team Momentum, the endurance running program for people of all abilities who want to dedicate their miles to helping kids and adul ts with muscular dystrophy live longer and grow stronger: “Chicago 2014, 2015, 2016 and now 2017. I ran Dallas with Team Momentum […]
  • Curb Free With Cory Lee Reviews Morgan’s Inspiration Island July 19, 2017
    Cory Lee, a travel blogger who focuses on accessibility and lives with spinal muscular atrophy (SMA) type 2, is well traveled to say the least. From wine tasting in Israel and going on safari in South Africa to relaxing in Iceland’s Blue Lagoon geothermal spa and meeting the indigenous Kichwa people of the Amazon, Corey […]
  • DMD Treatment Update: Emflaza [Webinar Recap] July 19, 2017
    Were you unable to attend the DMD Treatment Update: Emflaza webinar, presented by MDA in partnership with PTC Therapeutics? Check out what you missed and find key highlights below.  MDA Vice President and Scientific Program Director Grace Pavlath kicked off the webinar with an overview of Emflaza (deflazacort). PTC Therapeutics’ Todd Hudson, vice president of […]
  • Health Care Reform Must Be a Bipartisan Effort July 19, 2017
    Health care reform efforts will impact all Americans, including those living with neuromuscular disease. MDA has for months been urging policy makers that any effort to change the current system must be addressed in a non-partisan and collaborative way, and we now publicly call on Congress and the administration to move forward in this spirit. […]
  • 15 National Patient Advocacy Organizations Urge Congress to Oppose the ACA Repeal and Take a Bipartisan Approach to Reform July 19, 2017
    Fifteen nonpartisan patient and provider groups representing millions of Americans issued the following statement on July 18 on the Senate’s proposal to repeal the Affordable Care Act (ACA): Any attempt to repeal the ACA without replacing it with equal or better coverage will leave our health care system in shambles. If the existing law is […]

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