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RSS News

  • Hiker with BMD Checks in from the Camino de Santiago September 22, 2017
    Editor’s note: Bryan Steward, who lives with Becker muscular dystrophy, is hiking the 500-mile Camino de Santiago in Northern Spain. He recently wrote about his decision to take on such an arduous hike and updated us on his progress last month. He wrote to us again about his experiences on the trail. Justin Skeesuck and […]
  • State Ambassador Who Lives with FA Shares the Only Failure is Not Trying September 21, 2017
    When it comes to defying limits, MDA Virginia State Ambassador Angie Wilkerson, who lives with Friedreich’s ataxia (FA), has become somewhat of an expert. From graduating college (after she was told she wouldn’t be able to graduate high school because of a learning disability) to celebrating turning 40 after being told she would not live […]
  • Five Questions with FA Researcher Manuela Corti September 21, 2017
    Manuela Corti, assistant professor in the department of pediatrics at the University of Florida in Gainesville, was awarded an MDA research grant totaling $298,954 over three years to study gene therapy in Friedreich’s ataxia (FA). FA is caused by gene defects that result in insufficient levels of the frataxin protein in cells. With colleagues, Corti […]
  • Home Care Helps Young Professional with FSHD Live Unlimited September 21, 2017
    Being independent and living on your own is a rite of passage for young adults. For recent Brigham Young University alum Lauren McLane, the ability to go where her talents led her has made all the difference. The Illinois native has been far from home for a while now, spending her undergraduate years in Provo, […]
  • Southwest Florida Fire Fighters Give Muscular Dystrophy the Boot September 21, 2017
    Editor’s note: Since this story was written, Local 1826 and fire fighters across the southeast have continued to go above and beyond to help communities recover from the devastating effects of Hurricane Irma, including supporting our local families. For example, the local was able to deliver a generator, gas and food to an MDA family […]


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