IMPORTANT NEW HELP FOR LGMD FAMILIES AFFECTED BY COVID-19
The 2021 LGMD Conference will be going international for 2021. Due to the unique nature of a virtual event, anyone from all over the world can meet up for sessions over 4 days to discuss the best research in the world for Limb Girdle Muscular Dystrophy and hear from the leading experts in the field. Emerging research from top industry pharma and biotech will be presenting in incredible sessions with new information for the LGMD and international community.
Nothing great has ever happened without someone first believing it was possible. The National Limb Girdle Muscular Dystrophy Conference is a program and project of the Speak Foundation - a registered 501c3 since 2008. We are at a pivotal moment for LGMD treatments and it will take all of us together supporting efforts to find cures for every form. In 2006, our Founder, Kathryn Bryant, was diagnosed with LGMD 2i. At that time, there was a blank space for adult patients with muscular dystrophy and very few resources. The Speak Foundation began a free yearly conference in Atlanta, Ga to address the need in 2008 for any muscular dystrophy patient. TSF has helped to organize 11 conferences thus far. Since 2016, we have focused on creating strategic partnerships with biotech companies interested in LGMD research.
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The Speak Foundation is a 501c3