THE SPEAK FOUNDATION IS AN INTERNATIONAL ORGANIZATION FOR LGMD
The C.A.R.E. Program was created to provide newly diagnosed patients with limb-girdle muscular dystrophy with a giftbox full of helpful tools which includes smart technology and other supportive items donated by the International Consortium of LGMD Organizations. This program is specifically endowed for residents of the United States who were diagnosed with LGMD on or after
May 1, 2021.
To apply for a C.A.R.E. box, please click HERE.
The HOPE Project awards a one-time stipend of up to $500 to qualified applicants living in the United States who have a diagnosis of limb-girdle muscular dystrophy and need financial assistance for durable medical equipment (DME) expenses for mobility (including mobility scooters, bedside commodes, and shower chairs, for example).
We will be accepting applications beginning on May 1, 2021, through September 30, 2021.
To find out your eligibility and to apply for a stipend through The HOPE Project, please click HERE.
Sign up to be included in the Limb Girdle Muscular Dystrophy Patient Network where you will receive cutting edge research updates from the leading experts in the world such as the GRASP LGMD consortium and also be invited to hear about new clinical trials. When you sign up here, you will also receive the free LGMD News Magazine if you live in the USA. Anyone can join the LGMD Patient Network.