2016 Conference Highlight: Genetic Testing
For the very first time, a patient organization was able to offer genetic testing to individuals with neuromuscular diseases. Prior to this weekend, a doctor would bring in groups for this type of testing and, this weekend, we were able to genetically test through saliva for over 30 different rare genetic diseases without insurance or a doctor.
Thank you to the LGMD consortium for allowing us to be a test-taking location and to be the first patient group to offer such an amazing gift to our NMD community at our Speak Conference. Thank you to Genzyme for partnering with us this conference and sharing your information with our group!