2016 Conference Highlight: Andrea Klein on Understanding Breathing Muscle Weakness
Andrea Klein was born and raised in Cleveland, TN and works full time as a business analyst in healthcare IT. She lives with Collagen 6 Congenital Muscular Dystrophy and started using non-invasive ventilation in 2014. She has a passion for ensuring other NMD patients can identify and understand the symptoms of breathing muscle weakness and how to obtain appropriate care. Andrea founded “Breathe with MD” in memory of her sister Cheryl who passed away from respiratory failure in 2007. She was awarded a Personal Achievement Award at our conference last year for developing this nonprofit to assist with patient education for this very serious complication of some NMDs. She also recently co-authored a chapter in a pulmonary textbook being published in Germany.
Become a part of our Speak community on Facebook and you can connect with Andrea to follow her journey this October, as she is going to be a contestant in the Ms. Wheelchair Tennessee Pageant in Chattanooga, with a platform on educating about breathing muscle weakness!
Her hope this year as a presenter at our conference was that by sharing from the patient perspective as a user of nocturnal NIV, MVP (mouthpiece ventilation), and MAC (Mechanically Assisted Cough), it would make the information easy to understand and guide people to sources of reliable information on this treatable and often misunderstood complication of NMD. We hope you find her presentation as helpful as we did! You can access her presentation handout below:
“Slide handout from “Understanding Breathing Muscle Weakness” by Andrea L. Klein; presented July 23, 2016 at the 8th Annual Speak Foundation Conference for Individuals with Neuromuscular Disease in Atlanta, GA, USA
“Breathe with MD” is a great resource for those with breathing difficulties and questions!
*The following is a disclaimer about the content of this presentation handout: “This presentation is based on patient experience and reading medical literature. I am not a medical professional. Please don’t use this presentation as a substitute for medical care. Please seek medical care for breathing muscle weakness from a licensed professional who specializes in patients with neuromuscular disease.”-Andrea Klein